Friday 2 August 2013

About a Boy Named Owen

Owen as I have already mentioned, was born 12 weeks early at 28weeks alongside his twin sister Florence.
Owen had it tough while in SCBU, there were many many dark days where all we could do was sit by his incubator and just plain HOPE.
I will at some stage probably go into more detail about our experiences in SCBU but this post is basically just a quick overview of his medical story.

Owen has Chronic Lung Disease and came home on oxygen to be weaned off it completely by the end of January.  Owen was also diagnosed with having PVL after a routine head scan followed by a MRI scan two weeks before coming home from SCBU. He has some kind of Cerebral Palsy because of the PVL but we have not got a definite diagnosis of "which type" he has as yet.

http://www.scope.org.uk/help-and-information/cerebral-palsy/periventricular-leukomalacia-and-cerebral-palsy

Owen as you can imagine has lots of Hospital and Doctors appointments. He has Physiotherapy and Occupational Therapy and we have to do his movements, stretches, exercise and play therapy on a daily basis. Owen also is part of an early intervention programme and is waiting to see a speech therapists who will also do an eat study.

So in a very small nutshell.. That's about a boy called Owen but only in medical terms as there is so much more to Owen than his medical history and on going problems.





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